UK Parents of critically ill daughter fight to keep her alive after High Court rules to end life support

A family in England are fighting to keep their sick daughter alive after a court ruled it was in the “best interests” of the seven-month-old for doctors to end any future life-saving treatments.

Indi Gregory was born with a rare mitochondrial disease and hasn’t left the hospital since she was born.

According to the CDC, those who have a mitochondrial disease have cells that do not work correctly. There are many types of mitochondrial disease, and they can affect different parts of the body.

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Since she was born, the seven-month-old has endured two bowel operations, a shunt operation for fluid on the brain and multiple infections.

She is currently being cared for at the Queen’s Medical Centre in Nottingham.

Earlier this month, Indi’s parents Dean Gregory and Claire Staniforth were informed there would be a legal hearing to determine how their child was treated going forward.

According to campaign group Christian Concern, who is supporting Indi’s parents, the couple were only given 48 hours notice of the hearing.

Doctors at the hospital submitted a High Court application to end the little girl’s treatment, saying there was nothing more they could do to help her, as reported by the BBC.

On October 13, High Court judge Justice Robert Peel ruled that doctors could stop providing life-saving treatment to Indi, saying it was in her “best interests”.

Indi Gregory suffers from a rare mitochondrial disease. Credit: GoFundMe
Indi has not left the hospital since she was born seven months ago. Credit: GoFundMe

Following the ruling, Indi’s father Dean said in a statement issued by Christian Concern that the family would be appealing the judge’s decision.

“The doctors painted a terribly bleak and negative picture of Indi’s condition during court proceedings,” he said.

“During her short life, Indi has proved everybody wrong and deserves more time and care from the National Health Service (NHS) rather than seeking to end her life as soon as possible.

“It is criminal that parents who are trying to do everything for their child in such difficult circumstances are taken to court and have to contend with the weight of the whole system coming against them.

“We know she is disabled, but you don’t just let disabled people die. We just want to give her a chance.

“I and we as a family are prepared to do whatever it takes to fight for the life of our beautiful daughter, Indi.”

Indi’s dad Dean (left) says the family will not stop fighting for their little girl. Credit: GoFundMe

On Monday, according to the BBC, the parents’ challenge was dismissed in court.

After the latest hearing, Dean still said the family would continue to fight.

Christian Concern said it would take the case to the European Court of Human Rights in Strasbourg.

In a GoFundMe set up to help support the family and their ongoing appeals, Indi’s parents wrote what was happening to their daughter was “an injustice”.

“No parent should have the stress because they are fighting for their child and then being told that you will now have to go to court to fight the disagreement,” they said.

“We are fighting not just for Indi, but for all other children with mitochondrial disease or any other disease.”

Almost $A16,000 has been raised via the fundraiser so far.

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